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Final Report on how to engage citizens in the second life of their health data - future European Health Data Space
Within the framework of the TEHDAS Joint Action, co-funded by the EU4Health programme, the Health Data project was launched in 2021. The projects aims to better understand the perceptions of European citizens towards the second life of their health data and their preferences on how to engage them in the future European Health Data Space. To this end, the Healthy Data platform was created to allow citizens to contribute their thoughts and ideas. The project has collected almost 6,000 contributions, and the site has had more than 35,000 visits to date.
The team behind the Health Data project has now published the final report from the Healthy Data Consultation. It discusses 12 recommendations for the European Commission on how to engage citizens in the second life of their health data. This report allows stakeholders in the health data ecosystem to learn about the values that contributers have identified as important. Read all about it here.
Background: TEHDAS is the Joint Action Towards the European Health Data Space. Within TEHDAS, Sciensano (Belgium) the Health Data Hub (France) and the NHS Confederation (United Kingdom) compose the working group iCitizen, which has been set up to provide recommendations on the role of citizens in the future European Health Data Space, particularly on the involvement of patients, citizens, and their representatives on the reuse of health data for purposes beyond individual care.
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Cascade funding: DigitalHealthUptake Call for Training
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Avia-GIS - Software Technologies for a Healthier World
Avia-GIS is a Belgian innovative SME established in 2001. They have built research and public authority trust over the past 19 years and developed a unique, disruptive software suite - VECMAP® - that supports society to overcome one of its important health threats, the spreading of Pests of Public Health importance.
With the help of a Horizon 2020 SME Instrument Phase 2 project, they will be able to add Integrated Pest Management functionalities and go to the market. With the grant, that was an essential component of their second investment round, Avia-GIS aims at raising its revenue from the current 2 M€ to 14.2 M€ in 2024, and increase the headcount from 15 to 58.
